Stacey's Neuroendocrine Cancer Day Fundraiser

One Surgery, One Step Forward – Jon's NET Journey 🦓

Monday 26th Oct On 13 May 2026, Jon underwent major bowel surgery to remove a neuroendocrine tumour (NET), a cancer that had gone undetected for far too long. What was initially a diagnosis we'd barely heard of became a life-changing journey for both of us. During surgery, doctors discovered a large tumour in the area where his small and large bowel meet. The tumour had also affected surrounding structures, including part of his duodenum (small intestine). Jon underwent a laparoscopic right hemicolectomy, which involved removing the affected section of bowel and nearby lymph nodes. His surgeon also had to carefully separate the tumour from surrounding structures and repair part of his duodenum. It was a much bigger operation than we'd ever imagined. But through it all, there was Jon, still managing a smile and a thumbs-up. 💙 While the tumour has been surgically removed, our journey doesn't end there. We're now facing the uncertainty of follow-up scans and tests to determine whether all the cancer is gone or if it has spread elsewhere. And that's one of the hardest parts of cancer. Even after surgery, the waiting, the unanswered questions and the fear of what comes next don't simply disappear. We're incredibly grateful for the surgical team who cared for Jon and for how far he's come, but we also know there is still a road ahead. This is why raising awareness of neuroendocrine cancer means so much to us. NETs can go undiagnosed for years, and greater awareness could help others receive answers sooner. By supporting our fundraiser for NeuroEndocrine Cancer Australia, you're helping fund research, improve awareness and support patients and families navigating their own journeys. 💙 One surgery. One step forward. Still fighting for answers. 🦓 Together, we can make the unseen seen. With love, Stacey & Jon xx Share

Our Journey, Our Reason, Our Fight 💙🦓

Saturday 24th Oct

Cancer was never something we imagined would become part of our story, but this year it changed our lives in ways we could never have prepared for.

After years of unexplained symptoms, countless appointments and unanswered questions, my husband Jon was diagnosed with a neuroendocrine tumour (NET) in his bowel.

A cancer we'd barely heard of suddenly became a huge part of our world.

What followed was a whirlwind of appointments, surgery, waiting rooms, uncertainty and emotions we never knew we'd have to navigate.

While Jon's tumour was successfully removed through surgery, our journey is far from over. We're still living in that space of the unknown, waiting for further scans and tests to tell us whether the cancer is truly gone or whether it may have spread elsewhere.

It's a difficult place to be. Trying to remain positive, being grateful for how far we've come, but knowing there are still questions we don't have answers to. For us, cancer doesn't simply end when the surgery is over. The uncertainty, the waiting and the fear of what might come next are all part of the journey too.

Our experience has opened our eyes to just how little awareness there is surrounding this often misunderstood cancer.

Neuroendocrine cancer is frequently misdiagnosed, with many people living with symptoms for years before receiving answers. We know firsthand how important awareness and early detection can be.

That's why this Neuroendocrine Cancer Day, 10 November, we're turning our personal experience into something positive.

We're raising funds for NeuroEndocrine Cancer Australia to help support patients and families, increase awareness and contribute to vital research.

If sharing our story helps just one person recognise the symptoms, ask more questions or feel less alone, then it's worth it.

Whether you donate, share our page or simply take a moment to learn about NETs, every little bit makes a difference.

From the bottom of our hearts, thank you for supporting a cause that now means so much to us.

Together, we can make the unseen seen. 💙🦓

With love,

Stacey & Jon xx

#LetsTalkAboutNETs #NeuroendocrineCancerDay #MakeTheUnseenSeen

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